Tomarrow

Tomarrow  is the day we get the test results wish us luck.

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It's been a long while.

My son doesn't know this blog exists, so I feel pretty safe posting on here the things I can't tell him.

The things he knows are that his joints are swollen to almost twice their normal size.  He knows he has severe arthritis.

What he doesn't know is the dr is also testing him for leukemia.  He is severely anemic.

I feel guilty that I made him go to school today.  He was so swollen and sore.  He got almost no sleep last night.  I coaxed him into it by telling him he only had to get through today.  Then it's the weekend and he has a dr appointment on monday.  So, no school for him then either.

He also has a pulmonary edema.  Fancy word for pneumonia.  Though he's had it since the end of may beginning of june.

He had a sever case at the end of school last year and they put him on antibiotics and he got better.  He had a chest x ray about a week ago and it's still there.

His pneumonia got so bad because he didn't run a fever or cough.  The dr didn't know how he was still walking.

His arthritis is the same way the dr doesn't know how he's walking and has the joint mobility he does.  His affected joints are his toes, ankles, knees, hips, the joints in his buttocks, shoulders, elbows, wrists, and jaw. Today he has pain in his neck.

We go back to the  Rheumatologist  on monday to find out the results of the last round of blood work.

that's it for now
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IEP is done now.

One more year down.  School is going ok for him.  He's getting good grades now.  Things went nuts at school when I went to florida for eight days.  This just proved to me that I am more important to him than I thought.

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went to the doctor

It was a different doctor thank god.  We got him back on his meds.  We also have to get the ball rolling on childcare when he turns 13.  He can't be left alone yet.  He tries to cook and doesn't turn the burners off. Well this is gonna be fun.

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So we are going to the dr in 10 days

Monday the 4th we are going into see a doctor I can't stand.  I don't know how well this will go.  The receptionist who made the appointment didn't even know what asperger's was she even asked me to spell it.  I don't know how well this will go for gettting his prozac.  This is the same doctor's office that told me there was nothing wrong with him and then I got better insurance and he was diagnosed with mild epilepsy.  I have no faith in them,  but he's not doing well off the meds.  Keep your fingers crossed.

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Does any one else have a problem with alien parasites?

I don't know where he got it,  but critter believes that a bug bite on his hand is an alien parasite.  I don't have any idea where he got it from.  Now, he has alien parasites and mad cow disease.  How the hell he got these ideas in his heads I don't know.  Post a comment if you know how to handle this logic isn't working.

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Insurance headaches part 2

I finally after two days got it all straightened out.  Next week I get to handle the prescription people.  They never sent me a prescription card for the kids.  Their medical card will cover it, but still.  Then I have one day to find a new doctor, and deal with the prescription people.  My boss decided I didn't need two days off in a row and no one official works on Saturday.  Wish me luck.  I hope it only takes the one day or it will be another week until I can get him his prescrpition.

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